Nothing Without Labour

Artist, Writer, Troublemaker

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From the series: Sister’s Been A Troubled Teen Ever Since She Was Twelve
Alabama Love Song
Sweet Home, Alabama.
My Sepulchral Sweetheart
That Place Beneath the Apple Tree is (still) Reserved for You and Me.
Laughing

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My husband, 49 years ago. #nofilter #gameface #husbandnumber3
Taking a moment amongst the current madness to mourn the death of my beloved #dualit toaster. I bought this extravagant, kitschy beast with a little bit of cash inherited from my Great Aunt Ivy (aka ‘Arnie’) back in 2000. Nate was a baby, so I picked a three slot version (2 slices for me, 1 for Nate). The toaster has outlasted two husbands and several boyfriends, moved house 5 times and waved baby Nate off to university just a couple of weeks ago. In normal circumstances, the final demise of the rusty old thing would probably have made me cry, but a week after my little Ivy came out of ICU, my tear reservoir is still pretty empty. Nick’s about to take my beloved 18 year old toaster to the tip, and as I can’t cry, I will instead be humming Taps as they depart. Now back to a £4.50 Argos essentials, no doubt 😬
#ivytheterrible #haemophagocyticlymphohistiocytosis Wednesday part 2 and Thursday morning. We’ve both been asleep since we came home, Nick’s been looking after us both so all I’ve had to organise are Ivy’s meds. He has to go back to work on Sunday though 😬
Posting #ivytheterrible’s #HLH photos in #blackandwhite has made it easier for me. Looking at the colour versions is difficult, and while I’m keen to document her illness, it’s more to give my brain permission to let go of the images than it is to remember the details. Still, there are few that I want to keep in colour, and here are 3 of them. Ivy’s bruised, post #cannula foot and her matching mermaid #barrym nail varnish (she has bruises on both feet, both hands and both wrists, and in her groin, from blood draws and IVs. Now she has a #hickmannline all bloods and medicines can go through that, so hopefully, no more bruises to come). Ivy’s moods are swinging wildly as a side effect of steroids. This purple hat (a gift brought by the postman) helped enormously. Ivy’s favourite blue #Crocs and a #bluecar from the window of Ivy’s room in the #stemcell unit.
#ivytheterrible #haemophagocyticlymphohistiocytosis - Wednesday. Preparing to leave hospital. The words for these are on my Facebook profile - posts set to public - Paula Hardy Kangelos #hlh #hlhwarrior #histiocytosis #hemophagocyticlymphohistiocytosis
#ivytheterrible and #haemophagocyticlymphohistiocytosis - Tuesday. #hlh #hemophagocyticlymphohistiocytosis #rmch #isolation 💚🌿🐒💔
#ivytheterrible and #haemophagocyticlymphohistiocytosis - Monday. #hemophagocyticlymphohistiocytosis #hlh #rmch
#Ivytheterrible and #haemophagocyticlymphohistiocytosis - Saturday night to Monday morning #hemophagocyticlymphohistiocytosis #hlh #rmch
#ivytheterrible and #haemophagocyticlymphohistiocytosis - Thursday morning - Saturday night. #hlh #rmch #hemophagocyticlymphohistiocytosis 💚🌿🐒

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