Nothing Without Labour

Artist, Writer, Troublemaker

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Paula Hardy Kangelos
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Goodbye to Love

Alabama Love Song

That Place Beneath the Apple Tree is (still) Reserved for You and Me.

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The same after gig pizza shop photo from 2 perspectives. Love this man #husbandnumber3

2 years with this beautiful man. 2 eventful years, years that would strain even the most solid of couples. We’ve only ever had one drunken tiff. He’s my one.

#ivytheterrible sometimes worries that looking after her and spending so much time in hospital is ‘no fun for mama’. Mama doesn’t mind at all. Home now and out for dinner. 3 different clinic appointments in the coming week 😬 🌱🍀💚 #haemophagocyticlymphohistiocytosis #hlh #hemophagocyticlymphohistiocytosis #hlhsucks #lovestretford #m32

Exactly two months ago we set off for A&E in a minicab and quickly found ourselves in the upside down. #ivytheterrible does bath night on #ward84 #haemophagocyticlymphohistiocytosis #rmch #rmchward84 #hlh #hlhwarrior #hlhhistory #histiocytosis #hlhsucks #illloveyouforeverilllikeyouforalwaysaslongasimlivingmybabyyoullbe 🍀🌱💚

Not a #thumbsup but a thumb infection ☹️ waiting in A&E for an X-ray and some blood tests. It’s jam packed tonight so we’ve been put in the little room they use to give relatives bad news. Being #immunosuppressed is a bit like being a #rockstar, only not nearly as fun. #ivytheterrible #hlh #hlhsucks #haemophagocyticlymphohistiocytosis #hemophagocyticlymphohistiocytosis #hlhwarrior #cushingssyndrome

#goofy fools in #sparklyhats #ivytheterrible 💚🌱🍀

It’s the third SAC32 exhibition and the first one I haven’t participated in. #ivytheterrible isn’t keen on crowds at present so @lisa_heanley arranged for her to have a very private, private view. Exhibition is on ‘til Sunday. #m32 #stretford #lovestretford #sac32 #hlhwarrior #hlhsucks #hlh #cushingssyndrome

#hospital #selfiefail

Ordered #Ivytheterrible some emergency Velcro shoes. @sportsdirectuk sent 1 shoe. Just the right one. Now I have a hysterically crying, seriously ill 7 year old who is has been offered the new shoe equivalent of insult to injury. Off to #ward84 day case now with a #hickmanline problem. Way to make a shit day even shittier, Sports Direct! Shoes now out of stock and the only thing customer service will offer as a ‘good will gesture’ is ‘free postage’ 😬😭🙄 It cost me a £1 to phone the helpline, and I still only have one sodding shoe. Honestly, I think I’ve been pretty good at holding it all together since Ivy’s #haemophagocyticlymphohistiocytosis diagnosis but it looks like I was actually just one crap customer service experience away from absolutely losing my marbles. Thanks #sportsdirect

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